Not everyone experiences all the warning signs of GVHD, but many transplant recipients experience some of them. Some symptoms might develop into long-term problems. Others are temporary and will go away with treatment. Many of the early warning signs for GVHD could also be caused by infection or another side effect. That’s why it’s important to tell your doctor about any changes in your body that you see or feel.
If you have any signs or symptoms:
- Call your transplant team immediately.
- Give your health care team as many details as you can. Tell them when the symptoms started and what you’re feeling. This can help them figure out the cause and the best way to treat it.
Consider wearing a medical alert bracelet to tell others that you received a blood or marrow transplant. Keep a short treatment summary and your doctor’s phone number in your wallet. Then, in case of an emergency, anyone helping you will have this important medical information.
If your child had a transplant, look for early warning signs of GVHD every day. If you’re child’s old enough, ask specific questions about how he or she feels. Remind your child to tell you about any changes he or she sees or feels right away.