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Questions to ask your doctor:

  • What are my treatment choices?
  • What treatment do you recommend? Why?
  • What is the goal of this treatment?
    • To control symptoms?
    • To have a long-term remission—if so, for how long?
    • To cure my disease?
  • How many patients have you treated who have the same disease?
  • What are the chances that this treatment will get rid of the disease? For how long?
  • What are the chances that I could get rid of the disease without this treatment?
  • What are the possible risks and side effects of the treatment?
    • First few months?
    • First year?
    • Long term?
  • What can be done to lower the side effects?
  • Is it possible to continue work or school during treatment?
  • What can you tell me about my quality of life after this treatment?
  • How long will the treatment take?
  • How will we know whether the treatment is working?
  • What other choices do we have if the treatment does not work?
  • Do you know of any clinical trials that might be appropriate for me?

Questions to ask if a transplant is recommended:

  • When should I have a transplant?
  • What are the risks of waiting or trying other treatments first?
  • How long will I be in the hospital for my transplant?
  • How long do I have to stay near the hospital before I can return home?
  • What can I do to take care of myself and get better after transplant?
  • Is having a caregiver a requirement for this center?
  • What does a caregiver do while I’m in the hospital?
  • What about when I go back home?
  • What kind of care might I need after I return home?

Questions to ask if an allogeneic transplant is recommended:

  • Which family members will you test as possible donors?
  • If a family member is chosen as a donor, what would they have to do?
  • What happens if I don’t have a match in my family?
  • Is a reduced-intensity transplant an option?
    • Why or why not?
  • Is a haploidentical (half-matched) transplant an option for me?

Questions to ask if an autologous transplant is recommended:

  • How will you decide the best time to collect my cells?
  • How will you decide the best timing for transplant?
  • If the disease comes back (relapses), will I be eligible for an allogeneic transplant?