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Survivorship Care Plan: Why you need one

March 06, 2018

A Survivorship Care Plan is a complete record of your medical history, all the treatments given before, during and after transplant, and what follow-up care you need to stay healthy.

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Joining a clinical trial after your transplant

November 06, 2017

Before your transplant, you may have been asked to join a clinical trial, also known as a research study. A clinical trial is a way for doctors to gather information about how well a specific treatment might work.

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Feeling thankful during a difficult transplant recovery

November 06, 2017

It’s not unusual for people to feel thankful to be alive after overcoming a life-threatening illness. But being thankful after a blood or marrow transplant (BMT) can be difficult if you are also coping.

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Taking care of yourself when caring for a transplant patient

January 07, 2018

Researchers know that transplant caregivers are affected physically, emotionally, socially and spiritually by the transplant process and recovery. But caregivers may be thinking about all they have to do, and not thinking of taking care of themselves.

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Coping with body image changes after transplant

July 09, 2018

There are many side effects of a blood or marrow transplant (BMT) that can impact your body image. These include hair loss, skin and muscle changes, and weight gain or loss. Some side effects, such as fatigue (feeling tired), aren’t visible, but can still affect your body image.

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Meet Lorayne: Peer Connect volunteer

January 07, 2018

Lorayne was diagnosed with acute myeloid leukemia (AML) in October 2011, and 5 months later received a transplant. Now, Lorayne wants to give back and help others going through the transplant process. She has been a Peer Connect volunteer for about 4 years now.

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Returning to work after transplant: Tips for success

July 09, 2018

Doctors usually suggest transplant recipients wait at least 1 year before going back to work after transplant. That’s because it can take a year or more for your immune system to recover.

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Support for siblings after a blood or marrow transplant

September 05, 2018

Transplant and recovery is an emotional and challenging time for families. Each family member will cope differently as your child recovers. Your child’s siblings may experience stress in different ways, too.

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Tips for a gradual return to healthy exercise habits after transplant

September 05, 2018

You may feel ready to get back to some of the healthy habits you had before transplant, or start some new ones. Just like before your treatment, being physically active is one of the keys to feeling better and staying healthy.

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Ideas for expressing gratitude to your caregiver

November 08, 2018

The season of thankfulness may be inspiring you to express your gratitude for your caregiver. Expressing gratitude helps your caregiver feel appreciated, but it also has health benefits for you, too.

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Summer safety: Take steps to take care of yourself

April 25, 2018

With all you’ve been through, or are going through, it’s important to enjoy the simple pleasures of life after transplant. The warmth of the sun, the fresh summertime air, an outdoor barbeque with family and friends. By taking a few special precautions, you can enjoy the summertime and protect your health.

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Chemo brain: Learning how to cope

May 22, 2019

Are you having a hard time staying focused or remembering things? Do simple tasks take much longer than they used to? You may be experiencing a side effect of chemotherapy, often referred to as “chemo brain”. Chemo brain can be manageable, but coping with its emotional effects is not always easy. 

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Living with chronic GVHD of the eyes

May 22, 2019

Nearly 10 months after his transplant, Chris was back working in the office when he caught a cold from a co-worker. “My donor immune system did what it was supposed to do,” says Chris. “It rose up and fought off the illness, but then it didn’t calm down.” 

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Take one day at a time

May 13, 2019

Lorayne’s journey through AML diagnosis, treatment and recovery It was Monday, Oct. 17, 2011. Lorayne had just dismissed her class of kindergartners for the day when the school office told her she needed to call her doctor right away. 

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Coping with anxiety after transplant

November 08, 2018

Have you worried about the future? Felt anxious waiting for biopsy results? Or had persistent thoughts about graft-versus-host disease (GVHD)? You’re not alone. Sometimes anxiety is helpful, but too much worry about infection can slow your recovery if it limits your normal daily activities.

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