Registry & patient services

Patient Services develops and supports relationships with health professionals and their organizations to successfully serve all patients in need of transplantation.

We are dedicated to increasing access to information and resources for patients and their families before, during and after transplant. We do this by providing confidential, one-on-one support, free educational resources in a variety of formats and multiple languages, financial planning tools and small financial grants.

The Health Services Research program engages the CIBMTR and the Patient Services department in collaborative research. The program studies transplant-related health policy and health services related issues.

The Case Management department is responsible for proactively managing the cases of patients seeking stem cell transplants, in collaboration with Transplant Centers, Donor Centers and Cord Blood Banks. Case Management roles, including Case Managers and Case Associates, require a solid understanding of the clinical and scientific criteria that comprise these cases. In addition, to be successful, staff must demonstrate strong customer service skills, the ability to balance multiple priorities and exceptional communication skills.

Adult Donor Management Services specializes in facilitating donors through the process of donation once they have selected as the best potential match for a patient. Currently, there are 77 operated donor center staff located at 14 sites across the United States and Puerto Rico. Examples of responsibilities include:

• Providing operational support expertise while also seeking to improve the donor management process along with network donor, apheresis and collection centers.
• Identifying new opportunities to engage donor, apheresis and collection center to improve collaborations and donor management processes.
• Assists donor center, apheresis and collection center in complying with regulatory requirements.
• Coordinates with Case Management to meet patient needs for unrelated donor transplants.

Registry Member Services is responsible for many aspects of a member’s interactions with the Be The Match Registry^®. This includes management of Member Registration and Member Contact Center activities, outreach, education and screening when requested by a searching patient. Our goal is to sustain positive member experience through customer service excellence.

Cord Blood Operations is responsible for:

• Maintenance of the relationships with cord blood banks world-wide, including qualification, membership and on-boarding
• Providing resources and systems training in support of cord blood banks
• Coordinating with Case Management to meet patient needs for cord blood units
• Maintenance of the Health Resources and Services Administration (HRSA) contract for the Cord Blood Coordinating Center, including reports and deliverables

Donor Medical Services is staffed with physicians and nurses and provides the medical director role for all operated donor centers. We perform medical clearance of stem cell donors from these centers. In this role, we work to provide timely availability of stem cell products for waiting recipients while assuring donor safety. Additionally, Donor Medical Services supports the entire Network in providing guidance for donor medical assessment.

• Provides medical support in assessing potential donors from recruitment to collection working to assure both donor and recipient safety
• Performs medical clearance evaluation and approval for donors of the operated donor centers
• Maintains the Health History Screening Questionnaire and develops resource tools to aid in assessing potential donors