The journey you're on right now is likely the most difficult you've faced as a parent. Your focus is on your child's needs and helping your child be well again. But one of the most important things you can do for your child is to care for yourself, too.
What is the Parent’s Companion Program?
Parents in the program will be paired with a trained BMT patient navigator through the Be The Match Patient Support Center will check in with you by telephone. They will listen, share tips, help you with challenges you're facing, and support you in taking care of yourself.
Parents in the program will also receive:
• Book with tips, ideas and stories from other parents
• Wellness journal
• Water bottle
Who can enroll?
Parents who are caring for a child during or shortly after blood or marrow transplant.
Complete the registration form.
Talk with a Spanish-speaking BMT patient navigator.
Pida más información o inscríbase a través de firstname.lastname@example.org
Parent’s Companion book
The Parent's Companion is a guide for parents who are caring for a child going through a blood or marrow transplant (BMT). These chapters can help you build on your strengths and develop new ones as your family copes with transplant.
It can be hard to know how to cope when you are feeling so many different emotions. Learn how to understand common thoughts and feelings and find coping strategies that work for you.
Simple and direct communication can help you ease stress and avoid misunderstandings. This chapter has tips on how to communicate with the transplant team, family and friends.
Caring for a child during transplant can feel stressful and overwhelming. Learn how to stay connected to your social circle and accept help when you need it most
You probably aren't thinking about your own health right now, but caring for a child during transplant is stressful. Learn simple exercises to relieve stress, such a stretching and adding more walking into your day.
The stress you may feel causes wear and tear on your body, mood, productivity and quality of life. Learn how to understand what triggers your stress and simple relaxation techniques you can use to lower your stress. Also, get ideas on how to carve out personal time.
While caregiving can be demanding it can also have positive moments that may be life-changing. This chapter highlights ways to explore meaning, keep in touch with your own identity, and create positive moments and memories.
We gratefully acknowledge the grant provided by Genentech in support of the Parent's Companion program.