Helpful organizations
NMDPSM is dedicated to partnering with organizations to provide you with the support and information needed for your transplant journey. Our resource directory offers financial assistance, support and information about the transplant process to help you every step of the way.
Cancer & Careers (Opens in a new tab)
Cancer and Careers is dedicated to empowering and educating people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events. Cancer and Careers strives to eliminate fear and uncertainty for working people with cancer.
Resources: Career coaching, publications, support groups, educational seminars
Cancer Legal Resource Center (CLRC) (Opens in a new tab)
CLRC provides information and education about cancer-related legal issues, including insurance, employment rights and leave time, access to health care and government benefits, and advance planning to the public through its national telephone assistance line. The CLRC also conducts national education and outreach programs for community groups, employers and health care professionals and is actively involved in community activities to raise public awareness of cancer-related legal and public policy issues.
Resources: Education, outreach programs, telephone assistance line, public policy and awareness
HelpHOPELive (Opens in a new tab)
HelpHOPELive supports community-based fundraising for people with unmet medical and related expenses due to cell and organ transplants or catastrophic injuries and illnesses. HelpHOPELive helps relieve the financial burden of a medical crisis, provide hope at a time of overwhelming need and support patients and their families to live life as fully as possible.
Resources: Fundraising, customizable campaign page, one-on-one support, grants
Patient Advocate Foundation (PAF) (Opens in a new tab)
PAF is a direct patient services organization with a mission to eliminate obstacles for patients trying to access quality health care. PAF provides real-time help for patients facing critical illnesses as they encounter barriers in their health care, delivering tangible assistance through personalized case management services, financial support for medication copays and the connection to vital community resources—all at no cost to the patient or their caregiver.
Resources: Case management, insurance, financial support & resources
The Children’s Organ Transplant Association (COTA) (Opens in a new tab)
COTA helps children and young adults who are in need of a life-saving transplant by providing fundraising assistance and family support. COTA offers free services, including: a customizable website for fundraising, orientation and training programs; reimbursement and expense payments; and ongoing fundraising advice.
Resources: Fundraising, customizable website, grants, training programs
The National Children’s Cancer Society (NCCS) (Opens in a new tab)
NCCS provides emotional, financial and educational support to children, their families, and survivors.
Resources: Financial assistance, college scholarships, publications and support
Super Sibs/Alex’s Lemonade Stand (Opens in a new tab)
SuperSibs, powered by Alex's Lemonade Stand, is dedicated to comforting, encouraging, and empowering siblings during their family's battle against childhood cancer. The SuperSibs program provides free services, both online and through mailings, specifically to help brothers and sisters of children with cancer through, and beyond, this challenging life experiences.
Resources: Activities, resources and the Sibling Ambassador Program
Aplastic Anemia & MDS International Foundation (AA&MDSIF) (Opens in a new tab)
AA&MDSIF supports patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides answers, support and hope to thousands of patients and their families around the world.
Resources: Webinars, courses, patient helpline
CancerCare (Opens in a new tab)
CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved.
Resources: Counseling, support groups, education, financial assistance
Fanconi Anemia Research Foundation (Opens in a new tab)
Fanconi Anemia Research Fund, Inc. was founded in 1989 to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.
Resources: Family support & education, fundraising, publications
The Leukemia & Lymphoma Society (LLS) (Opens in a new tab)
LLS is a nonprofit dedicated to funding blood cancer research with the goal of curing leukemia, lymphoma, Hodgkin’s disease and myeloma. They provide free education and one-on-one support for cancer patients and their families as well as drive policy changes that promote cancer treatment and care.
Resources: Fact sheets, webcasts, financial assistance, patient education conferences
Lymphoma Research Foundation (Opens in a new tab)
The Lymphoma Research Foundation (LRF) engages in researching more than 100 subtypes of lymphoma and providing needed support for patients and their loved ones affected by the disease. Their focus is on funding hyper-focused research on cures for every type of lymphoma, educating those impacted by the disease so they can make informed decisions about treatment and spread awareness through public advocacy.
The Myelodysplastic Syndromes Foundation, Inc. (MDS) (Opens in a new tab)
The MDS Foundation is a multi-disciplinary, international organization devoted to support, research, treatment, and education for patients, caregivers, physicians, nurses and other health care providers. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases.
Resources: Publications, support groups, forums, videos
Sickle Cell Disease Association of America (SCDAA) (Opens in a new tab)
SCDAA has a mission to advocate for and enhance their membership’s ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.
Resources: Family support and education, testing and counseling, and support groups through local chapters
Blood and Marrow Information Network (BMT InfoNet) (Opens in a new tab)
BMT InfoNet is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high-quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants. BMT InfoNet’s goal is to empower you with credible information and emotional support, so that you can take a more active role in decisions affecting your health and treatment options before, during and after transplant.
Resources: Webcasts, transplant resources, books
Bone Marrow & Cancer Foundation (Opens in a new tab)
The Bone Marrow & Cancer Foundation is dedicated to improving the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, educational information, and emotional support programs.
Resources: Financial assistance, education, emotional support programs
The National Bone Marrow Transplant Link (nbmtLINK) (Opens in a new tab)
nbmtLINK strives to help patients, caregivers and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship. nbmtLINK provides vital information through valuable resource books, distributed nationally through our partnering cancer (transplant) centers. Many of their resources are also available on-line. They provide specialized and personalized support services as well.
Resources: Peer support, survivorship programs & publications, webcasts, GVHD support & resources
Halo House (Opens in a new tab)
Halo House’s mission is to help save the lives of cancer patients battling leukemia, lymphoma and myeloma by offering them access to clean, temporary and affordable housing so that they can pursue treatment at the Texas Medical Center (TMC). Halo House’s vision is that one day no one battling a blood cancer will have to worry about where they are going to live during treatment in Houston, or going bankrupt while paying for living, eating, and parking expenses here, and their rent or mortgage back home.
Hope Lodge (Opens in a new tab)
The American Cancer Society Hope Lodge offers a home away from home for free for people facing cancer and their caregivers when cancer treatment is far away. These communities provide a sense of support and emotional connection from others facing the same journey.
Ronald McDonald House (Opens in a new tab)
The Ronald McDonald House Program is a home away from home that provides comfort, support, and resources to families who travel far from home for the medical care of their child. Services include comforting meals, quality sleep, and playtime for children.