Outcomes data (information on how patients have done after their transplant) is used to estimate transplant outcomes for patients with adrenoleukodystrophy (ALD). Outcomes data only show how other patients have done as a group. This information can’t tell how your child will do as an individual for sure. It can only give you an idea of how other patients have done with a similar disease and treatment.
No two people are exactly the same, and your child may respond differently to transplant than someone else. Talk to your transplant doctor about how outcomes data may apply to your child’s specific situation. Fortunately, transplant outcomes have continued to improve over time.
Find more information about transplant outcomes and other factors to consider when making treatment decisions.